Thursday 16 May 2019

Life Update and Recent Favourites

Hi everyone, just thought I'd post a little update for you and let you know what I've been up to and what I'm watching of late.

April was pretty hectic, first off I started up a new Instagram account.  It's called Stronger Than We Think and it's just somewhere for me to upload some of my favourite quotes about positivity, my own deep thoughts and poems, mindfulness, depression, health etc.  Sometimes it gets a bit dark but then so do I, it's the type of stuff I don't feel happy sharing on my main IG account so only follow if you want, don't feel you have to, but thanks if you do.

Secondly, as mentioned above and you may have guessed going by the tone of some of my posts this year so far, but my anxiety and depression has taken a downward spiral and I've been struggling a lot.  I want to talk more about this at a later time because sadly I know so many people who are also struggling and it makes me so sad that everyone seems to suffer alone and feel like they are the only ones feeling that bad, they're not.  There are so many of us struggling and not coping, and I really want to do something to try and help that.  But that's something for another time.  Anyway, for my own sanity, I visited my GP recently and got referred to a Social Prescriber (never even knew that was a thing), who I saw a couple of weeks ago and again today (last week as I upload this).  She's very nice, I poured my heart out to her and apparently she's going to try and help me in practical ways.  While I also go and see a councillor to help sort my mess of a mind out, who I'm due to see at the end of May.  So I'll let you know how that goes and if it helps.  I'm hoping it will be an on-going process as basically I have a whole list of crap to work through!

For a little Heidi-the-Poodle update - she is completely adorable, loving life and never stops.  The 'puppy-biting' is a bit of a nightmare, especially as I'm always covered in teeth marks now-a-days and so is half our furniture!!!  But, hopefully that's just a phase, one she will soon (please God) grow out of, so I've been told.

On the Easter bank holiday weekend at the end of April, my family and I took her out for the day to Prestatyn.  Thankfully the weather was actually gorgeous!  And Heidi got to experience her very first time on sand, which was seriously one of the cutest things!!  She absolutely loved it and was whizzing around all over the place (there's a mini video on my IG).  We also discovered that Prestatyn has a really lovely waterfall called the Rhaeadr Dyserth Waterfall, which was tucked away in the middle of a really pretty wooded/park area with a gorgeous little stream, it was all very picturesque and made a nice day out.
As for any make up/product favourites these past months, let's put it this way, apart from last weekend, I haven't worn make up on my face since about January and I think half my stash may well be past it's best so.....  These days, I barely leave the house it seems, let alone have time to look presentable.  So keeping real, 'Instagramable' and 'Pinterest-worthy' I am not lol

Speaking of last weekend, to end off April I went to one of my favourite conventions, Wales Comic Con.  Admittedly it wasn't the most fun day of the year this time around as the weather was atrocious and I got soaked in the short time I was there, that particular morning was 'one-of-those-days' where EVERYTHING was going wrong, including taking the wrong bank card and me suddenly freaking out in the taxi thinking oh crap, I'm not going to have any money while I'm there or be able to get home (don't worry I got it sorted, eventually), as well as getting there late and not being able to find any of my friends!!  BUT despite that, I MET DAVID TENNANT!!!!!!!!!!!!!!!!!!!!!!!!  Oh my gosh, that man has such a sexy smile and he was SO sweet, completely made the rest of the crapy day worthwhile, I've been a fan of his for sooo many years, way before he was (let's face it) the best Doctor ever!!  I also met Billie Piper who was really nice and friendly.  And Emmy Raver-Lampman, who plays the beautiful Alison in one of my new favourite shows The Umbrella Academy (more on that in my next post).  I made her a TUA themed charm bracelet and she not only loved it, she really spent time with me talking about it and really looking at all the charms, it made my day.

Talking of new favourite shows, I have been heavily relying on Netflix of late to relax my over-stressed brain and wow have I found some gems.  I was going to write about them all in this post, but honestly, I SO did not plan for this post to be quite so long!!  So I'm going to do a Netflix Favourites for my next post and I'll write a mini review of each show, you might even find something new to watch, and there's quite a few!!

So until next time, Stay Happy

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Tuesday 7 May 2019

Living with an Invisible Illness

Hi everyone, after my last post I received very mixed reactions and comments.  Some people thought I was being quite over the top and dramatic saying how hard I was finding having a new puppy (who is currently driving me mad and still wearing me out, bless her little fluffy paws)!

I feel a new puppy for anyone can be super tiring as a few people have told me, but for someone with my type of health condition it can be a even harder.  So for those who don't know, I thought I would take this opportunity to tell you a bit more about my heath conditions and the type of symptoms I have to deal with on a daily basis.  To start off with I have several conditions; Fibromyalgia, Ehlers Danlos Syndrome (EDS) and chronic IBS, these all come with their own symptoms but as they often go hand-in-hand with each other, the symptoms get very intermingled.

Have you ever run a marathon and the next day feel like you've been hit by a truck, or had the worst flu ever?  That's how bad I feel 90% of the time, that level of feeling like I have no energy left, feeling weak, achy and in pain.

Doing even the most simple mundane tasks like vacuuming, washing up, having a shower or changing the bedding, tasks that most people barely think about, exhaust me to the point where sometimes I almost pass out.  And as for going out, even just for a few hours makes me so tired and worn out I have to sleep and try to recuperated for at least the following couple of days.

Here's a brief list of symptoms that I live with all day, every day -
Achy and very painful joints, muscles and limbs
Bones dislocating easily
Muscle spasms
Brain fog
Random weird feelings anywhere on my body that can feel like hot patches, itchy for no reason, pain like I've just bashed myself, bruised feeling or extremely sore patches that feel like cuts and grazes.
Just bending down gives me stomach pains and makes me dizzy.
As well as all that, I have very over sensitive skin, I can even feel a hair on me and clothes labels feel like razor blades, and if I get knocked or poked, it pains and bruises as much as if I had been hit.

That's just stage one, then when I've been doing tasks, add in to that list even more exhaustion, less energy, feeling extremely dizzy and sick, sometimes palpitations too, that's stage two.  And if I try to push on through it and carry on with daily tasks or extra jobs that I need to do, I go on to stage three where all my symptoms get worse and I end up feeling so exhausted and ill, I can barely move.

Finally, the more I do, the worse I get and if I over-do things too much too often, and/or I get too over stress, I get flare ups.  These are like being in stage two/three constantly for up to a week.  Trying to 'live life' and function feeling this  bad, is incredibly hard I can tell you, but life doesn't stop, the tasks still need to be done, and of course our puppy still has needs too.  Which as you may understand a little more now, is why I was finding it so hard.  In fact I was finding it so hard and getting so stressed with the whole situation (i.e feeling ill and still needing to manage), that I even had a break out of bad eczema which I haven't suffered with for about 9 years!  After eliminating different foods and other possible causes, my doctor told me was all due to the stress, I didn't even know stress could cause eczema but apparently yes it can!

So there you go, just a brief insight into what I deal with each day and how I feel.  It's not easy, it's not fun but sadly I'm used to it so I make the best of it and push through because that's just what you have to do.  Just maybe next time you throw the duster around or take out the trash, spare a thought for those of us with an 'Invisible illnesses' that can't do all these simple things quite so easily!

If you would like to know more details about how I came to have these health issues, when I was diagnosed etc, you can click here to see my post all about it, or click on the 'health' tab at the top of the page.

Going back to basics in my next post, with a little life update and some favourites.  So until next time, Stay Happy

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